No one would have ever imagined the Torreys leaving the house armed with a supply of emergency medication and a list of top neurologists or ever needing to change their teenage son’s diaper at 36,000 feet. That’s the thing about life — there is so much you can’t imagine until it happens. You just need to figure out how you’re going to get through it and, more importantly, what’s going to hold you together.
Smiles and Duct Tape follows the Torreys on their harrowing journey through Adrenoleukodystrophy (ALD), the rare and cruel disease that forever changed their son’s life. It’s far from the journey they embarked on when they started their family, but they have managed not only to survive, but also enjoy the ride. A powerful and transformative story of a family’s courage and willingness to carry on and live their new normal with grace, humor, and incredible strength.